rdf-syntax-grammar
mods:
  schema location: http://www.loc.gov/mods/v3 http://www.loc.gov/standards/mods/v3/mods-3-2.xsd
  title info:
    title: Informed Consent in Predictive Genetic Testing
    sub title: A Revised Model
  name:
    name part: Minor, Jessica.
    role:
      role term: creator
    role:
      role term: author.
  name:
    name part: SpringerLink (Online service)
  type of resource: text
  origin info:
    place:
      place term: gw
    date issued: 2015
    issuance: monographic
  language:
    language term: eng
  physical description:
    form: electronic
    form: electronic resource
    reformatting quality: access
    form: remote
    extent: VII, 232 p. online resource.
  abstract: This important book proposes revising the current informed consent protocol for predictive genetic testing to reflect the trend toward patient-centered medicine. Emphasizing the predictive aspect of testing, the author analyzes the state of informed consent procedure in terms of three components: comprehension of risk assessment, disclosure to select appropriate treatment, and voluntariness. The book's revised model revisits these cornerstones, restructuring the consent process to allow for expanded comprehension time, enhanced patient safety, greater patient involvement and autonomy, and reduced chance of coercion by family or others. A comparison of the current and revised versions and case studies showing the new model in real-world applications add extra usefulness to this resource. Included in the coverage: The science behind PGT. Understanding genetic risks and probability. The history of informed consent. Revised model of informed consent: comprehension, disclosure, voluntariness, patient safety. Applications of the model in DTC and pleiotropic genetic testing. Implementation of the revised model, and assessing its effectiveness. A milestone in the bioethics literature, Informed Consent in Predictive Genetic Testing will be of considerable interest to genetic counselors, medical and bioethicists, and public health professionals.
  table of contents: Introduction -- Predictive Genetic Testing -- The History and Components of Informed Consent -- Revised Model of Informed Consent -- Application of the Revised Model -- Conclusion.
  note: by Jessica Minor.
  subject:
    topic: Medicine
  subject:
    topic: Human genetics
  subject:
    topic: Maternal and child health services
  subject:
    topic: Psychotherapy
  subject:
    topic: Counseling
  subject:
    topic: Health psychology
  subject:
    topic: Medicine & Public Health
  subject:
    topic: Maternal and Child Health
  subject:
    topic: Psychotherapy and Counseling
  subject:
    topic: Human Genetics
  subject:
    topic: Health Psychology
  classification: RG940-991
  classification: RJ101-104.2
  classification: 613
  related item:
    title info:
      title: Springer eBooks
  identifier: 9783319174167
  identifier: http://dx.doi.org/10.1007/978-3-319-17416-7
  record info:
    record creation date: 150615
    record change date: 20151124202536.0
    record identifier: 978-3-319-17416-7