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oapen-20.500.12657-284242022-05-04T12:22:06Z The Poetics and Politics of Alzheimer’s Disease Life-Writing Zimmermann, Martina dementia alzheimer patients thoughts experiences Caregiver Narrative bic Book Industry Communication::M Medicine::MM Other branches of medicine::MMH Psychiatry This is the first book-length exploration of the thoughts and experiences expressed by dementia patients in published narratives over the last thirty years. It contrasts third-person caregiver and first-person patient accounts from different languages and a range of media, focusing on the poetical and political questions these narratives raise: what images do narrators appropriate; what narrative plot do they adapt; and how do they draw on established strategies of life-writing. It also analyses how these accounts engage with the culturally dominant Alzheimer’s narrative that centres on dependence and vulnerability, and addresses how they relate to discourses of gender and aging. Linking literary scholarship to the medico-scientific understanding of dementia as a neurodegenerative condition, this book argues that, first, patients’ articulations must be made central to dementia discourse; and second, committed alleviation of caregiver burden through social support systems and altered healthcare policies requires significantly altered views about aging, dementia, and Alzheimer’s patients 2018-09-24 23:55 2020-03-18 13:36:15 2020-04-01T12:22:36Z 2020-04-01T12:22:36Z 2017 book 1001534 OCN: 993681848 9783319443881 http://library.oapen.org/handle/20.500.12657/28424 eng Palgrave Studies in Literature, Science and Medicine application/pdf n/a Bookshelf_NBK464709.pdf Springer Nature Palgrave Macmillan 10.1007/978-3-319-44388-1 10.1007/978-3-319-44388-1 6c6992af-b843-4f46-859c-f6e9998e40d5 d859fbd3-d884-4090-a0ec-baf821c9abfd 9783319443881 Wellcome Palgrave Macmillan Basingstoke 099351/Z/12/Z Wellcome Trust Wellcome open access
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This is the first book-length exploration of the thoughts and experiences expressed by dementia patients in published narratives over the last thirty years. It contrasts third-person caregiver and first-person patient accounts from different languages and a range of media, focusing on the poetical and political questions these narratives raise: what images do narrators appropriate; what narrative plot do they adapt; and how do they draw on established strategies of life-writing. It also analyses how these accounts engage with the culturally dominant Alzheimer’s narrative that centres on dependence and vulnerability, and addresses how they relate to discourses of gender and aging. Linking literary scholarship to the medico-scientific understanding of dementia as a neurodegenerative condition, this book argues that, first, patients’ articulations must be made central to dementia discourse; and second, committed alleviation of caregiver burden through social support systems and altered healthcare policies requires significantly altered views about aging, dementia, and Alzheimer’s patients
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