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oapen-20.500.12657-483832021-04-27T00:47:53Z Chapter 5 In defense of a conditional harm threshold test for paediatric decision-making Wilkinson, Dominic ethical decisions; child; parents; Gard case; Alfie Evans bic Book Industry Communication::M Medicine::MB Medicine: general issues The case of Charlie Gard raises a number of serious ethical questions, including how a child’s best interests should be assessed, the role of parents in decision-making for a child, the appropriateness of trying untested experimental treatment in a serious ill child, and the allocation of limited healthcare resources. Elsewhere, I have reviewed these questions in some detail and explored the implications for future disputes over medical treatment for children.1 In this chapter, I will focus on one of the questions that arose in the Gard case and was also raised in the subsequent case of Alfie Evans. If there is disagreement between parents and health professionals about treatment for a child, should courts overrule parents on the basis of an assessment of what would be best for the child, or only if what the parents propose would be harmful for the child? I will largely focus on the ethical question (and leave the more specific legal questions to other commentators in this volume).2 I outline the ethical case for using a harm threshold test rather than a best interests test, identifying a set of cases where these tests may yield different decisions. I respond to a series of counterarguments against the use of harm thresholds. In the last part of the chapter, I propose a compromise, a conditional harm threshold test that would apply only if there is a question of preventing parents from pursuing treatment that other health professionals are offering to provide. I explore the implications of this test for a set of challenging cases similar to the Gard/Evans cases, setting out two different alternatives for evaluating the harm of prolonging life in children with absent consciousness. 2021-04-26T10:02:57Z 2021-04-26T10:02:57Z 2019 chapter https://library.oapen.org/handle/20.500.12657/48383 eng application/pdf Attribution 4.0 International Bookshelf_NBK556970.pdf Hart Publishing Parental Rights, Best Interests and Significant Harms 6e5c1b33-df1a-4ad3-a711-cc7d2768d49e bf6ae3af-999a-48b1-805e-a19ff6c88ac4 d859fbd3-d884-4090-a0ec-baf821c9abfd Wellcome 17 Oxford Wellcome Trust Wellcome open access
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The case of Charlie Gard raises a number of serious ethical questions, including how a child’s best interests should be assessed, the role of parents in decision-making for a child, the appropriateness of trying untested experimental treatment in a serious ill child, and the allocation of limited healthcare resources. Elsewhere, I have reviewed these questions in some detail and explored the implications for future disputes over medical treatment for children.1 In this chapter, I will focus on one of the questions that arose in the Gard case and was also raised in the subsequent case of Alfie Evans. If there is disagreement between parents and health professionals about treatment for a child, should courts overrule parents on the basis of an assessment of what would be best for the child, or only if what the parents propose would be harmful for the child? I will largely focus on the ethical question (and leave the more specific legal questions to other commentators in this volume).2 I outline the ethical case for using a harm threshold test rather than a best interests test, identifying a set of cases where these tests may yield different decisions. I respond to a series of counterarguments against the use of harm thresholds. In the last part of the chapter, I propose a compromise, a conditional harm threshold test that would apply only if there is a question of preventing parents from pursuing treatment that other health professionals are offering to provide. I explore the implications of this test for a set of challenging cases similar to the Gard/Evans cases, setting out two different alternatives for evaluating the harm of prolonging life in children with absent consciousness.
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