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oapen-20.500.12657-509252021-10-14T02:43:36Z Chapter 2 Family not to be informed? Meyer, Jessica Moncrieff, Alexia consent; ethics; family history; footnotes; stigma; war pensions bic Book Industry Communication::M Medicine::MB Medicine: general issues::MBX History of medicine bic Book Industry Communication::H Humanities::HB History::HBL History: earliest times to present day::HBLW 20th century history: c 1900 to c 2000 bic Book Industry Communication::H Humanities::HB History::HBJ Regional & national history::HBJD European history::HBJD1 British & Irish history What are the ethics that shape or should shape engagement with historical medical data, particularly archives containing patient voices? This question has come to the fore through the ‘Men, Women and Care’ project, a European Research Council-funded project creating a database of information drawn from the PIN 26 personal pension award records from the First World War. Held by the National Archives, London, these records contain a wealth of personal information, including potentially sensitive details of medical conditions and diagnoses, as well as material concerning stigmatising social situations, such as domestic violence, prostitution and illegitimacy. Using material drawn from ‘Men, Women and Care’, this chapter considers the opportunities presented and challenges posed by this material as sources for historical analysis. It considers issues of both disciplinary practice and theoretical framing to explore the position of the historian in relation to analysing and disseminating the historical patient voice. In doing so, it asks what use historians can and should make of this information and what steps the historical community might consider taking to articulate a code of ethics around practice that is sensitive both to family feeling and academic enquiry. 2021-10-13T10:06:52Z 2021-10-13T10:06:52Z 2021 chapter https://library.oapen.org/handle/20.500.12657/50925 eng Social Histories of Medicine application/pdf Attribution 4.0 International 9781526154897_ch2.pdf Manchester University Press Patient voices in Britain, 1840–1948 6110b9b4-ba84-42ad-a0d8-f8d877957cdd ab451ccd-c635-4fb8-8b9b-c9fa43801fed 28 Manchester open access
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What are the ethics that shape or should shape engagement with historical medical data, particularly archives containing patient voices? This question has come to the fore through the ‘Men, Women and Care’ project, a European Research Council-funded project creating a database of information drawn from the PIN 26 personal pension award records from the First World War. Held by the National Archives, London, these records contain a wealth of personal information, including potentially sensitive details of medical conditions and diagnoses, as well as material concerning stigmatising social situations, such as domestic violence, prostitution and illegitimacy. Using material drawn from ‘Men, Women and Care’, this chapter considers the opportunities presented and challenges posed by this material as sources for historical analysis. It considers issues of both disciplinary practice and theoretical framing to explore the position of the historian in relation to analysing and disseminating the historical patient voice. In doing so, it asks what use historians can and should make of this information and what steps the historical community might consider taking to articulate a code of ethics around practice that is sensitive both to family feeling and academic enquiry.
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