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oapen-20.500.12657-573202022-07-14T03:00:34Z Stem Cell Transplantations Between Siblings as Social Phenomena Schües, Christina Rehmann-Sutter, Christoph Jürgensen, Martina Herzog, Madeleine Transplantation medicine Medical sociology Medical ethics Bone marrow stem cells Family studies bic Book Industry Communication::H Humanities::HP Philosophy bic Book Industry Communication::P Mathematics & science::PS Biology, life sciences::PSA Life sciences: general issues::PSAD Bio-ethics bic Book Industry Communication::M Medicine::MB Medicine: general issues::MBS Medical sociology This open access book offers insights in short- and long-term experiences from families with bone marrow transplantations between minor siblings. It is based on the first extended qualitative study with 17 families about experiences with recent transplants and experiences with transplants up to 20 years in the past. It covers reflections of donors, recipients and other family members, as well as family interactions. Transplantation of bone marrow from one sibling to another who is ill with a blood cancer (such as Leukemia) is a life-saving therapy. Young children however are not in a position to give consent themselves. How should they be adequately included, depending to their age? Which ethical questions are raised for the parents both at the time of treatment and afterwards, and for the medical professionals in clinical and regulatory contexts? For an in-depth discussion of the findings the books brings together a group of leading scholars from the fields of bioethics, family sociology and philosophy of medicine. 2022-07-13T12:27:02Z 2022-07-13T12:27:02Z 2022 book ONIX_20220713_9783031041662_16 9783031041662 https://library.oapen.org/handle/20.500.12657/57320 eng Philosophy and Medicine application/pdf n/a 978-3-031-04166-2.pdf https://link.springer.com/978-3-031-04166-2 Springer Nature Springer International Publishing 10.1007/978-3-031-04166-2 10.1007/978-3-031-04166-2 6c6992af-b843-4f46-859c-f6e9998e40d5 48cf0e5e-b95e-4fc7-8e38-ef9123d0d674 9783031041662 Springer International Publishing 144 279 Cham [...] open access
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This open access book offers insights in short- and long-term experiences from families with bone marrow transplantations between minor siblings. It is based on the first extended qualitative study with 17 families about experiences with recent transplants and experiences with transplants up to 20 years in the past. It covers reflections of donors, recipients and other family members, as well as family interactions. Transplantation of bone marrow from one sibling to another who is ill with a blood cancer (such as Leukemia) is a life-saving therapy. Young children however are not in a position to give consent themselves. How should they be adequately included, depending to their age? Which ethical questions are raised for the parents both at the time of treatment and afterwards, and for the medical professionals in clinical and regulatory contexts? For an in-depth discussion of the findings the books brings together a group of leading scholars from the fields of bioethics, family sociology and philosophy of medicine.
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