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oapen-20.500.12657-583612022-09-16T03:16:02Z Axial Spondyloarthritis: Patient-Reported Impact in Europe Garrido-Cumbrera, Marco Navarro-Compán, Victoria Bundy, Christine Mahapatra, Raj Makri, Souzi Delgado-Domínguez, Carlos J. Plazuelo-Ramos, Pedro Poddubnyy, Denis Non-radiographic axial spondyloarthritis Axial spondyloarthritis Ankylosing spondylitis Patient survey Quality of life bic Book Industry Communication::M Medicine::MJ Clinical & internal medicine::MJM Rheumatology This open access book provides an overview of the International Map of Axial Spondyloarthritis (IMAS) project -focusing on Europe-, a wide-ranging, multi-disciplinary collaboration between academic groups, Health Care Professionals (HCPs), patient organizations and Novartis. IMAS was conceived to improve knowledge of Axial Spondyloarthritis (axSpA) and raise awareness of its heavy burden globally. By asking more than 2,000 patients across Europe about the impact of axSpA on multiple aspects of their life, the full extent of this disease was investigated from a direct patient perspective. This allowed a unique understanding of how living with axSpA affects the daily lives and well-being of patients, and how this varies between European countries. Axial Spondyloarthritis: Patient-Reported Impact in Europe highlights opportunities for progressing quality patient care to be applied to health services globally. HCPs, policy makers and patients will find this book to be an indispensable resource for improving the understanding of this chronic condition, including patients’ clinical outcomes, the protection of those at risk of psychological distress, and the economic burden on patients and society. 2022-09-15T20:13:37Z 2022-09-15T20:13:37Z 2022 book ONIX_20220915_9783030976064_17 9783030976064 https://library.oapen.org/handle/20.500.12657/58361 eng application/pdf n/a 978-3-030-97606-4.pdf https://link.springer.com/978-3-030-97606-4 Springer Nature Springer International Publishing 10.1007/978-3-030-97606-4 10.1007/978-3-030-97606-4 6c6992af-b843-4f46-859c-f6e9998e40d5 76442d97-c19b-40bc-bce6-cadffdcb8a8e 9783030976064 Springer International Publishing 109 Cham [...] Novartis Novartis AG open access
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This open access book provides an overview of the International Map of Axial Spondyloarthritis (IMAS) project -focusing on Europe-, a wide-ranging, multi-disciplinary collaboration between academic groups, Health Care Professionals (HCPs), patient organizations and Novartis. IMAS was conceived to improve knowledge of Axial Spondyloarthritis (axSpA) and raise awareness of its heavy burden globally. By asking more than 2,000 patients across Europe about the impact of axSpA on multiple aspects of their life, the full extent of this disease was investigated from a direct patient perspective. This allowed a unique understanding of how living with axSpA affects the daily lives and well-being of patients, and how this varies between European countries. Axial Spondyloarthritis: Patient-Reported Impact in Europe highlights opportunities for progressing quality patient care to be applied to health services globally. HCPs, policy makers and patients will find this book to be an indispensable resource for improving the understanding of this chronic condition, including patients’ clinical outcomes, the protection of those at risk of psychological distress, and the economic burden on patients and society.
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