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oapen-20.500.12657-598702024-03-27T14:14:21Z The Disabled Child Apgar, Amanda childhood, disability, special needs, parental memoir, parents of children with disabilities, care, neoliberalism, gender studies, disability studies, childhood studies, studies of memoir, queer theory, sexuality studies, crip theory, feminist disability studies, autobiography, narrative theory, medical humanities, literature and medicine, disability life-writing, feminist, queer, crip, disability justice, settler colonialism, whiteness, the good life thema EDItEUR::J Society and Social Sciences::JB Society and culture: general thema EDItEUR::J Society and Social Sciences::JB Society and culture: general::JBF Social and ethical issues::JBFM Disability: social aspects When children are born with disabilities or become disabled in childhood, parents often experience bewilderment: they find themselves unexpectedly in another world, without a roadmap, without community, and without narratives to make sense of their experiences. The Disabled Child: Memoirs of a Normal Future tracks the narratives that have emerged from the community of parent-memoirists who, since the 1980s, have written in resistance of their children’s exclusion from culture. Though the disabilities represented in the genre are diverse, the memoirs share a number of remarkable similarities; they are generally written by white, heterosexual, middle or upper-middle class, ablebodied parents, and they depict narratives in which the disabled child overcomes barriers to a normal childhood and adulthood. Apgar demonstrates that in the process of telling these stories, which recuperate their children as productive members of society, parental memoirists write their children into dominant cultural narratives about gender, race, and class. By reinforcing and buying into these norms, Apgar argues, “special needs” parental memoirs reinforce ableism at the same time that they’re writing against it. 2022-12-07T12:30:37Z 2022-12-07T12:30:37Z 2023 book 9780472075690 9780472055692 https://library.oapen.org/handle/20.500.12657/59870 eng Corporealities: Discourses Of Disability application/pdf Attribution-NonCommercial-NoDerivatives 4.0 International 9780472903030.pdf https://www.bibliovault.org/thumbs/978-0-472-05569-2-highres.jpg; https://www.bibliovault.org/thumbs/978-0-472-05569-2-frontcover.jpg; https://www.bibliovault.org/thumbs/978-0-472-05569-2-thumb.jpg University of Michigan Press 10.3998/mpub.12221256 10.3998/mpub.12221256 e07ce9b5-7a46-4096-8f0c-bc1920e3d889 9780472075690 9780472055692 214 open access
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When children are born with disabilities or become disabled in childhood, parents often experience bewilderment: they find themselves unexpectedly in another world, without a roadmap, without community, and without narratives to make sense of their experiences. The Disabled Child: Memoirs of a Normal Future tracks the narratives that have emerged from the community of parent-memoirists who, since the 1980s, have written in resistance of their children’s exclusion from culture. Though the disabilities represented in the genre are diverse, the memoirs share a number of remarkable similarities; they are generally written by white, heterosexual, middle or upper-middle class, ablebodied parents, and they depict narratives in which the disabled child overcomes barriers to a normal childhood and adulthood. Apgar demonstrates that in the process of telling these stories, which recuperate their children as productive members of society, parental memoirists write their children into dominant cultural narratives about gender, race, and class. By reinforcing and buying into these norms, Apgar argues, “special needs” parental memoirs reinforce ableism at the same time that they’re writing against it.
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