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oapen-20.500.12657-762232023-09-14T03:39:49Z Challenging Assumptions Around Dementia Ashworth, Rosalie Fyvel, Sue Hill, Alyson Maddocks, Chris Qureshi, Masood Ross, David Hay, Stuart Robertson, Martin Gilder, Willy Henry, Winnie Lamont, Myra Houston, Agnes Wilson, Fred S. dementia research participatory methodology gerontology ageing mental health research biomedicine psychology social psychology Parkinson's disease dementia with Lewy bodies Fronto-Temporal Dementia Vascular dementia Alzheimer’s disease neuroprogressive conditions lived experience clinical trials ethnography interviews User-led Research bic Book Industry Communication::M Medicine::MJ Clinical & internal medicine::MJX Geriatric medicine bic Book Industry Communication::M Medicine::MM Other branches of medicine::MMJ Clinical psychology bic Book Industry Communication::P Mathematics & science::PS Biology, life sciences::PSA Life sciences: general issues::PSAN Neurosciences bic Book Industry Communication::M Medicine::MB Medicine: general issues::MBN Public health & preventive medicine::MBNH Personal & public health::MBNH9 Health psychology bic Book Industry Communication::J Society & social sciences::JM Psychology::JMB Psychological methodology This open access book explores the expectations surrounding dementia, what it ‘looks like’ and how people have been treated by others. It aims to raise awareness of the different types of dementia, and how they impact the brain, body, and lived experience, including experience of Alzheimer’s disease, Vascular Dementia, Posterior Cortical Atrophy, Frontotemporal Dementia, Semantic Dementia, and Lewy Body Dementia. The co-authors reflect on their experience with informal and formal care, before finishing with a focus on the spectrum of dementia research from clinical trials to user-led research. Throughout the book, co-authors have shared personal stories of how dementia has affected them and people with lived experience of dementia share what they wish people knew about living with the disease. Co-produced by people with lived experience of dementia, academics and health care professionals, this book is an accessible resource about dementia from the perspective of people actively involved in the field and essential reading for healthcare professionals wishing to learn more about the experience of this neuroprogressive condition, as well as policymakers, and members of the public. 2023-09-13T19:45:39Z 2023-09-13T19:45:39Z 2023 book ONIX_20230913_9783031272233_7 9783031272233 9783031272226 https://library.oapen.org/handle/20.500.12657/76223 eng application/pdf n/a 978-3-031-27223-3.pdf https://link.springer.com/978-3-031-27223-3 Springer Nature Palgrave Macmillan 10.1007/978-3-031-27223-3 10.1007/978-3-031-27223-3 6c6992af-b843-4f46-859c-f6e9998e40d5 d0bda3c1-7149-4083-af1d-f219c7979434 9783031272233 9783031272226 Palgrave Macmillan 146 Cham [...] Chief Scientist Office CSO open access
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This open access book explores the expectations surrounding dementia, what it ‘looks like’ and how people have been treated by others. It aims to raise awareness of the different types of dementia, and how they impact the brain, body, and lived experience, including experience of Alzheimer’s disease, Vascular Dementia, Posterior Cortical Atrophy, Frontotemporal Dementia, Semantic Dementia, and Lewy Body Dementia. The co-authors reflect on their experience with informal and formal care, before finishing with a focus on the spectrum of dementia research from clinical trials to user-led research. Throughout the book, co-authors have shared personal stories of how dementia has affected them and people with lived experience of dementia share what they wish people knew about living with the disease. Co-produced by people with lived experience of dementia, academics and health care professionals, this book is an accessible resource about dementia from the perspective of people actively involved in the field and essential reading for healthcare professionals wishing to learn more about the experience of this neuroprogressive condition, as well as policymakers, and members of the public.
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