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oapen-20.500.12657-904402024-05-24T02:23:46Z Vulnerability Revisited Schroeder, Doris Chatfield, Kate Chennells, Roger Partington, Hazel Kimani, Joshua Thomson, Gillian Odhiambo, Joyce Adhiambo Snyders, Leana Louw, Collin Vulnerable populations Global research ethics Low and middle-income countries Non-clinical health research Research governance thema EDItEUR::Q Philosophy and Religion::QD Philosophy::QDT Topics in philosophy::QDTQ Ethics and moral philosophy thema EDItEUR::P Mathematics and Science::PD Science: general issues::PDA Philosophy of science thema EDItEUR::M Medicine and Nursing::MB Medicine: general issues::MBD Medical profession::MBDC Medical ethics and professional conduct thema EDItEUR::R Earth Sciences, Geography, Environment, Planning::RN The environment::RNU Sustainability thema EDItEUR::M Medicine and Nursing::MQ Nursing and ancillary services Open access. This open-access book discusses vulnerability and the protection-inclusion dilemma of including those who suffer from serious poverty, severe stigma, and structural violence in research. Co-written with representatives from indigenous peoples in South Africa and sex workers in Nairobi, the authors come down firmly on the side of inclusion. In the spirit of leaving no one behind in research, the team experimented with data collection methods that prioritize research participant needs over researcher needs. This involved foregoing the collection of personal data and community researchers being involved in all stages of the research. In the process, the term ‘vulnerability’ was illuminated across significant language barriers as it was defined by indigenous peoples and sex workers themselves. The book describes a potential alternative to exclusion from research that moves away from traditional research methods. By ensuring that the research is led by vulnerable groups for vulnerable groups, it offers an approach that fosters trust and collaboration with benefits for the community researchers, the wider community as well as research academics. Those living in low-income settings, in dire situations that are summarized with the term ‘vulnerability’ know best what their problems are and which priorities they have. To exclude them from research for their own protection is a patronizing approach which insinuates that researchers and research ethics committees know best. The team from this book have shown that minimally risky and minimally burdensome research tailored towards the needs of highly marginalized and stigmatized communities can be scientifically valuable as well as inclusive and equitable. I congratulate them. Prof. Klaus Leisinger, President Global Values Alliance, Former personal advisor to Kofi Annan on corporate responsibility 2024-05-23T07:47:40Z 2024-05-23T07:47:40Z 2024 book ONIX_20240523_9783031578960_29 9783031578960 9783031578953 https://library.oapen.org/handle/20.500.12657/90440 eng SpringerBriefs in Research and Innovation Governance application/pdf n/a 978-3-031-57896-0.pdf https://link.springer.com/978-3-031-57896-0 Springer Nature Springer Nature Switzerland 10.1007/978-3-031-57896-0 10.1007/978-3-031-57896-0 6c6992af-b843-4f46-859c-f6e9998e40d5 92cd3990-ff5b-4246-bf60-ec1dd130a122 9783031578960 9783031578953 Springer Nature Switzerland 145 Cham [...] University of Central Lancashire UCLan open access
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Open access. This open-access book discusses vulnerability and the protection-inclusion dilemma of including those who suffer from serious poverty, severe stigma, and structural violence in research. Co-written with representatives from indigenous peoples in South Africa and sex workers in Nairobi, the authors come down firmly on the side of inclusion. In the spirit of leaving no one behind in research, the team experimented with data collection methods that prioritize research participant needs over researcher needs. This involved foregoing the collection of personal data and community researchers being involved in all stages of the research. In the process, the term ‘vulnerability’ was illuminated across significant language barriers as it was defined by indigenous peoples and sex workers themselves. The book describes a potential alternative to exclusion from research that moves away from traditional research methods. By ensuring that the research is led by vulnerable groups for vulnerable groups, it offers an approach that fosters trust and collaboration with benefits for the community researchers, the wider community as well as research academics. Those living in low-income settings, in dire situations that are summarized with the term ‘vulnerability’ know best what their problems are and which priorities they have. To exclude them from research for their own protection is a patronizing approach which insinuates that researchers and research ethics committees know best. The team from this book have shown that minimally risky and minimally burdensome research tailored towards the needs of highly marginalized and stigmatized communities can be scientifically valuable as well as inclusive and equitable. I congratulate them. Prof. Klaus Leisinger, President Global Values Alliance, Former personal advisor to Kofi Annan on corporate responsibility
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